Ryker's Foundation

Ryker’s Foundation, was created after we received a devastating diagnosis that our son Ryker, has Infant Onset Pompe Disease. This diagnosis gave our family a passion to advance research in the disease by financially supporting institutions involved in treatment development. Although an enzyme replacement therapy (ERT), has been developed for Pompe Disease that has increased the lifespan of patients affected, it is still a progressive disease. The need to find a more effective treatment with the goal of finding a cure, will answer our prayers for individuals and families affected by this rare disease. Please join us in our mission by changing the future of Pompe patients.


Our Mission

To spread awareness of Pompe Disease by sharing personal experiences and stories of those afflicted. To serve, advocate, and support the advancement of research and treatments.

Ryker's Story


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Thank You to Our Sponsors

Ryker's Foundation would like to take the time to thank all of our generous sponsors who support our organization.